[A]n intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raises . . . It is a beautiful book, heartfelt and profound, warm and wise.--Jane Bernstein ("Loving Rachel").[A]n intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raises . . . It is a beautiful book, heartfelt and profound, warm and wise.--Jane Bernstein ("Loving Rachel").Read Less
Very good. Appearance of only slight previous use. Cover and binding show a little wear. All pages are undamaged with potentially only a few, small markings. Help save a tree. Buy all your used books from Thriftbooks. Read. Recycle and Reuse.
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Good. Ex-Library Book-will contain Library Markings. Book shows minor use. Cover and Binding have minimal wear and the pages have only minimal creases. A tradition of southern quality and service. All books guaranteed at the Atlanta Book Company.
Publishers Weekly, 2011-03-14 Canadian writer Brown presents a moving and deeply felt account of his life with his son Walker, who is one of fewer than 300 people in the world who were born with CFC, cardiofaciocutaneous syndrome, an extremely rare genetic mutation that didn't even have a name until 1986. Brown is uncompromising in his description of his son's condition-which includes mental and physical disabilities such as seizures, severe facial irregularities, an inability to speak, and a compulsion to hit himself-as well as the impact that raising him has had on Brown, his wife, and their daughter: "the years of desperate worry and illness and chronic sleep deprivation... threatening our marriage and our finances and our sanity." But Brown spends an even greater amount of time sensitively describing the many joyous moments that reveal to him how "Walker is an experiment in human life lived in the rare atmosphere of the continuous present." And the second half of the book describes Brown's fascinating worldwide investigations into the various living situations offered to people with CFC as well as his visits with other families whose children have CFC. (May) (c) Copyright PWxyz, LLC. All rights reserved.
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